Happy Father’s Day – Tips for Fathers with Epilepsy

Father’s Day will be held this Sunday, June 21st, and all of us at the BC Epilepsy Society and the I AM A VOICE for Epilepsy Awareness™ campaign think it is a great time to discuss fathers with epilepsy. If you are a father who has epilepsy, please see below for our tips:

• Tip 1: Explain your epilepsy to your child: Explaining your epilepsy to your child is important because if they are not aware that you have epilepsy and they see you having a seizure, it may be frightening for them. Keep explanations simple for your children at younger ages and continue to add additional information as they grow older. It is important to remember that you should use age-appropriate language and avoid complex medical terminology as it may make it harder for them to understand. Check out BC Epilepsy Society resources on A Child’s Guide to Seizure Disorders and on Straight Talk on Epilepsy: What Kids Need to Know resources for ideas on age-appropriate explanations on epilepsy for children. You can also check out a BC Epilepsy Society blog here on various picture books and novels on epilepsy to read with your child to explain epilepsy to them. If your child asks a question about epilepsy that stumps you, you can also check out BC Epilepsy Society Information Sheets on over 75 different epilepsy-related topics or ask your healthcare provider to get them the information that they need.
• Tip 2: Teach your child what to do if you have a seizure: It is important that your child knows what your seizures look like and understands how to help you in case you were to have a seizure around them. Check out BC Epilepsy Society resources on Seizure First Aid and on Seizure Types and First Aid for more information.
• Tip 3: See your healthcare provider for regular checkups: Your healthcare provider is there to help you during your journey with epilepsy. Healthcare providers can include family physicians/general practitioners, neurologists, epileptologists, nurses, pharmacists, etc. and they are there for you to answer questions and provide the care you need. Check out resources on Making the Most of Your Doctors Visit and on Your Health Care team for more information.
• Tip 4: Remember to take your medications on time: Missing a dose of medication is one of the main triggers for seizures so complying to treatment protocols as set out by your healthcare provider is important, including taking your medications regularly, on time and at the correct dosage as prescribed to you by your healthcare provider. Check out BC Epilepsy Society resources on Anti-Epileptic Medications and on Your Medication for Epilepsy for more information.
• Tip 5: Reduce seizure risk by getting enough sleep: Sleep deprivation is one of the main triggers for seizures so following regular sleep habits and trying to get at least 8 hours of sleep a night is important. If you are the father of an infant/newborn, you can try sleeping while your child is napping to ensure that you are getting enough sleep. Check out a BC Epilepsy Society resource on Seizures and Sleep for more information.
• Tip 6: Reduce seizure risk with a healthy balanced diet: Fueling your body and mind by eating healthy foods is important. Avoid junk food and eating a balanced diet with healthy, whole foods is important for both physical health and mental health and may even play a role in seizure control.
• Tip 7: Reduce seizure risk by exercising regularly: Exercise is important for both physical health and mental well-being. Try to get some exercise, even if it is going on a daily walk around your neighborhood, Exercise energizes you, pumps your body full of endorphins that make you feel good, reduces stress, and may even play a role in seizure control.
• Tip 8: Take precautions to ensure safety with epilepsy: We all live with risks in our daily lives and having epilepsy may increase that risk for some people, including yourself. It is important to take precautions to ensure your own safety as well as the safety of others. What precautions you need to take depends on a number of factors; for example, a father with epilepsy who has frequent seizures without warning may need to take more precautions than a father with epilepsy who has very well controlled seizures or who experiences a warning prior to a seizure. You may want to try things like ensuring that help is nearby when doing tasks, cooking only using appliances that have an automatic shutoff system, changing diapers on a changing pad on the floor rather than on a raised changing table, etc. Check out resources on Seizures and Your Safety for more details.
• Tip 9: Build a community of support: Building a community of support involves having a network of family, friends and loved ones that you can turn to in times of need. Whether you require assistance or simply want to spend time with people who care about you, building a community of support is helpful in many areas of health and well-being for all people, including fathers with epilepsy.
• Tip 10: Get support from one of our support groups: Joining a support group can be helpful as you can share your experiences and learn from others going through similar situations. Please click here for more information on our support groups.
• Tip 11: Prioritize your own self-care: As a father, life’s responsibilities may begin adding up and that you may become both physically and mentally exhausted. It is important to remember that your own self-care is important, especially as increased stress levels could trigger a seizure. Attend to your physical needs like getting enough sleep, eating healthy and nutritious meals, and making physical activity a priority. You also can find ways to relax and rejuvenate, such as listening to music, reading a good book, meditating, etc. While this may feel overly self-indulgent, rest assured that it is not. It is important to rejuvenate yourself in order to be able to better take care of others.
• Tip 12: Continue living your life as best as you can: Keep in mind that you having epilepsy does not mean that your family cannot do the same things as any other family. You will still be able to do all the things a family loves to do but there may be some adjustments that are needed. If you need information or support during this time, please feel free to reach out to the BC Epilepsy Society at 604-875-6704 or at info@bcepilepsy.com.

We hope that are tips are helpful for all the fathers out there who have epilepsy. Happy Father’s Day everyone!