Listed below are websites and services that may be of interest and assistance to you. Please note, the BC Epilepsy Society does not necessarily endorse all content on these websites.
College of Physicians and Surgeons of British Columbia (CPSBC)
This website provides a directory of physicians and medical specialists who are accepting new patients, and physician contact information.
Vancouver General Hospital Epilepsy Clinic
This hospital provides in-patient and out-patient care for diagnosis, medical management, and pre-surgical assessments.
BC Children's Hospital Seizure Clinic
This hospital provides comprehensive, specialized care to children and teens with neurological disorders.
This service provides non-emergency health information and support services online and by phone at 811.
BC Health Authorities
This website provides contact and service information for public healthcare facilities in the province.
Provincial Government Disability Support Services
Click here for a detailed document about BC government programs and services for those with physical or mental health needs.
Ministry of Children and Family Development
Services include a range of child, youth, and family focused support programs and interventions. This includes services specifically for children and youth with special needs.
Ministry of Social Development
This service coordinates employment programs and disability assistance for adults.
Community Living BC
This service delivers support and services to individuals with special needs (primarily adults with developmental disabilities).
Persons with Disabilities Online
This website provides extensive information about government services available provincially and federally.
Infant Development Program
Provides specialized programs that focus on infants and young children who have a developmental delay or who are at risk for delayed development for established, biological and/or psychosocial reasons.
Provides information and referrals by phone about government agencies.
Health & Disability Support Organizations in BC
Disability Alliance BC (formerly called the BC Coalition of People with Disabilities)
The Coalition is a non-profit cross-disability organization that represents people with all types of disabilities throughout BC.
BC Centre for Ability
The Centre provides medical, social work, and vocational services to children, youth, and adults with neurological and/or other disabilities and their families.
Family Support Institute
The Institute provides support and advocacy for families of people with disabilities, as well as resources, information, and parent networks.
Inclusion BC (formerly known as the BC Association for Community Living)
This is a federation working to enhance the lives of children, youth, and adults with developmental disabilities and their families by supporting abilities, promoting action, and advancing rights, responsibilities, and social justice.
Developmental Disabilities Association
This is a community living agency that provides over 50 community-based programs and services to children, adults, and families with developmental disabilities in Vancouver and Richmond.
Planned Lifetime Advocacy Network (PLAN)
PLAN is a family-led organization founded to secure the future for people with disabilities.
Learning Disabilities Association of BC
This organization provides information and services for parents, professionals, and students. They have chapters throughout BC.
BC Aboriginal Network on Disability
Provides a variety of support services and resources to help aboriginal people with disabilities.
Rare Disease Foundation
Researchers, caregivers, and families work together to find solutions for children and families affected by rare diseases through social support, advocacy, and treatment-focused research.
Financial Help for Medical Costs
Medical Services Plan (MSP)
Coverage, eligibility, and enrollment information is available for medically-required services for BC residents. MSP premium assistance is available for low-income families on a pro-rated basis. Short-term temporary premium assistance is also available based on unexpected current financial hardship.
Residents of BC qualify for PhamaCare coverage by registering with MSP. It helps cover the cost of eligible prescription drugs and designated medical supplies. It provides access to drug therapy through seven different plans. The largest is the income-based Fair PharmaCare plan. Read more about general PharmaCare Coverage policies.
Persons with Disabilities Benefit (PWD)
This is a financial support program for people with disabilities who are unable to seek or find employment.
Registered Disability Savings Plan (RDSP)
This plan helps people with disabilities and their families save for long-term financial security.
Non-Insured Health Benefits for First Nations and Inuit
Health Canada's national health benefit program provides coverage for benefit claims for a specified range of drugs, dental care, vision care, medical supplies and equipment, short-term crisis intervention mental health counseling, and medical transportation for eligible First Nations people and Inuit.
Variety – The Children’s Charity
Provides financial assistance for children under the age of 19 who have special needs with the costs of a wide range of equipment, therapies, and educational, social, and recreational programs. As well, they have Emergency Response Grants to help children and their families access medical care, supplies, and related services not covered by MSP, Pharmacare, hospitals, or other agencies.
The BC Lions Society for Children With Disabilities
Their mandate is to support children with disabilities throughout British Columbia. They also fund Easter Seals camps and houses.
President's Choice Children's Charity
They provide funding for mobility equipment, environmental modifications, or therapy for children under the age of 18 with a developmental disability.
CKNW Orphan’s Fund
They provide funding for medical equipment and services for children, particularly for those with disabilities and in financial need.
Employment Support Services
The provincial government runs WorkBC Employment Services Centres across the province. The purpose of the centres is to support British Columbians in getting —and keeping – a job as quickly as possible. Phone:1-877-952-6914
BC Centre for Ability
They provide various vocational services for people with disabilities. This includes:
- Opportunities Fund for Persons with Disabilities: Assists people with disabilities to obtain employment or self-employment by contributing to training plans and funding. 604-451-5511
- Greater Vancouver Business Leadership Network: Offers services to link people with disabilities to potential employers, including a job database. 604-630-3031
They deliver a pre-employment service designed specifically for persons with neurological disabilities.
Neil Squire Society
They provide services for individuals for whom a physical disability is the primary barrier to employment.
Open Door Group
A non-profit organization that helps people find employment and connect to their community. They deliver services in Vancouver, Kamloops, the Sunshine Coast, Lillooet and the South Okanagan.
Community Futures B.C.
They offer programs designed to assist persons with a disability or living in a rural area to start or grow their own business.
The Developmental Disabilities Association coordinates this supported employment program specifically for people with a developmental disability.
This organization offers a customized employment program for people with behavioural, intellectual, or physical disabilities.
An organization with the goal to bring families together to share knowledge and network to increase the inclusion of people with disabilities in the economic community as workers, entrepreneurs, consumers, and taxpayers.
Community Living BC (CLBC)
CLBC offers supported employment and volunteer services for people with developmental disabilities, or who fall under CLBC eligibility requirements.
An initiative through the BC government to connect job seekers with disabilities to employers. Employers can post jobs online, which can then be accessed by job seekers.
WowJobs is now Canada's largest and most comprehensive search engine. This site pulls from 6000 sources across Canada and finds employment opportunities other search engines simply do not. This link will serve as a wonderful resource for social workers and job seekers.
Wowjobs BC Specific for persons with disabilities in British Columbia.
School and Child Care Support Information and Resources
BC school district websites
The homepage for the British Columbia School District defines the school zones, procedures, and standards for education practices in British Columbia.
Special Education Services: A Manual of Policies, Procedures and Guidelines from the BC Ministry of Education
Strategies for effective school meetings and documentation
You'll find an extensive collection of disability resources to support parental advocacy and ensure successful negotiations and outcomes.
Your Future Now: A Transition Planning and Resource Guide
This is a step-by-step planning guide to adulthood for those with disabilities who want to achieve their personal and professional goals.
Canada Study Grants for Students with Disabilities
Outlines the application procedures and eligibility requirements for those with a permanent disability who are applying for the Human Resources and Skills Development Canada Study Grant for Post-Secondary Accommodations.
National Educational Association of Disabled Students (NEADS)
They encourage the self-empowerment of post-secondary students with disabilities by providing resources on education, inclusion, employment, and related issues.
They support adults with developmental disabilities to go to their local college or university in BC regardless of their level of ability.
Support Worker Central
An online database designed to match individuals, families, and agencies with support workers in their communities.
Camps for Children with Medical Conditions or Disabilities
BC Easter Seals Camps
These camps provide sessions for children 6 to 18 years of age who have a cognitive and/or physical disability. Camps are located at Winfield, Shawnigan Lake, and Squamish. The BC Epilepsy Society provides a camp subsidy for individuals who require it.
Eureka Outdoor Camp
This camp is for children ages 8-18 with invisible disabilities (such as learning disabilities, ADHD, or epilepsy). They have locations in North Vancouver and Princeton. The BC Epilepsy Society provides a camp subsidy for individuals who require it.
This summer camp outside of Mission offers programs especially designed for children with chronic health conditions or disabilities. The BC Epilepsy Society provides a camp subsidy for individuals who require it.
Elks Recreational Children's Camp Society of BC
A free camping facility on Denman Island for children who might not otherwise have an opportunity for a camping or holiday experience. Accommodations are available for children with special needs.
Epilepsy Information for Children and Teens
This is the educational website from the SickKids Hospital in Toronto. It contains a wide variety of articles on epilepsy specific to children and parents.
For Youth with Epilepsy
This is a information specifically for teens from epilepsy.com.
Girls with Nerve
This website gives information about reproductive and sexual health issues for teen girls with epilepsy.
Mental Health Support Services
Bounce Back: Reclaim Your Health
This is a program designed to help adults experiencing symptoms of depression and anxiety through online and telephone support.
Here to Help
You'll find information on mental health, mental disorders, substance abuse issues, and inspiring personal stories.
Kelty Mental Health Resource Centre
The Centre links children, youth, and their families with appropriate resources in all areas of mental health and addictions.
This is an extensive directory of psychologists, counselors, and other professional therapists who provide services in BC.
Crisis Centre of BC
The Centre operates a phone line to provide help, support and someone to listen to when you are feeling emotionally overwhelmed, vulnerable, or troubled.
Driving and Transportation Information
Drivers with Epilepsy
This is a fact sheet from the Office of Superintendent of Motor Vehicles (OSMV), which explains the regulations and legal processes for drivers with epilepsy in BC.
They provide information on regional transit services.
The BC Bus Pass Program
This program offers a reduced cost, annual bus pass for low income seniors and individuals receiving the Persons with Disabilities benefit (PWD).
This is a door-to-door shared ride service for people with a physical or cognitive disability who are unable to use public transit without assistance.
Travel Assistance Program (TAP)
This program offers travel discounts to eligible BC residents who must travel within the province for non-emergency medical specialist services not available in their own community.
Discount fares are available for residents of British Columbia who have a permanent disability (this applies to passenger fares only.)
This is a not-for-profit service offering flights for medical care outside of home communities.
They provide a variety of subsidized and/or assisted living options for low-income families, seniors, people with disabilities, adults at risk of homelessness, and women at risk of violence.
Vela Microboard Association of BC
A non-profit society that provides subsidized housing for people with developmental challenges in Metro Vancouver.
Access Pro Bono
They are a BC non-profit society that provides free legal advice and representation services to individuals of limited means.
Community Legal Assistance Society
Provide legal advice and assistance to use and develop the law for the benefit of people who are physically, mentally, socially, economically or otherwise disadvantaged or whose human rights need protection.
BC Human Rights Clinic
The Clinic is a provincial human rights clinic that provides assistance and representation to those who need help dealing with a provincial human rights complaint.
Human Rights Tribunal
The Tribunal is an independent, quasi-judicial body created by the BC Human Rights Code. The Tribunal is responsible for accepting, screening, mediating, and adjudicating human rights complaints that arise in British Columbia and are covered by the Human Rights Code.
Public Guardian and Trustee of BC
The Public Trustee is responsible for the legal and financial interests of children under the age of 19 and people with development disabilities.
Advocate for Service Quality
Clarifies rules and policy of services for adults with developmental disabilities.
Nidus Personal Planning Resource Centre and Registry
A non-profit charitable organization that provides information to British Columbians about personal planning. Personal planning involves making legal arrangements in case you need help managing your affairs during your lifetime due to an illness, injury, or disability.
Epilepsy Organizations and Resources Outside of British Columbia
Canadian Epilepsy Alliance
A partnership between grassroots epilepsy organizations in Canada dedicated to the promotion of independence, quality of life, and full community participation of persons with and affected by epilepsy, through innovative support services, advocacy, education, and public awareness.
A non-profit organization whose mission is to enhance the quality of life for persons affected by epilepsy through promotion and support of research and facilitation of education and awareness initiatives that build understanding and acceptance of epilepsy.
Canadian League Against Epilepsy (CLAE)
Their goal is to develop, through research, innovative therapeutic and preventative strategies to avoid the consequences of epilepsy. They also want to translate these discoveries into applicable therapies for all Canadians.
The Epilepsy Foundation
This is an American-based federated group of state and local epilepsy organizations.
International League Against Epilepsy (ILAE)
This is the world's preeminent association of physicians and other health professionals working towards a world where no person's life is limited by epilepsy. Its mission is to provide the highest quality of care and well being for those afflicted with the condition and other related seizure disorders.
International Bureau for Epilepsy (IBE)
The IBE links national epilepsy organizations around the world. Their website contains information about their initiatives, as well as information on social and non-medical aspects of epilepsy, aimed at improving quality of life of patients and caregivers.
A network for families, friends, and caregivers of people with Dravet spectrum disorders in Canada.
The LGS Foundation
They are a non-profit organization dedicated to providing information about Lennox-Gastaut Syndrome (LGS). This is a rare and severe form of epilepsy. They also raise funds for research, programs, and services for LGS families.
ICE Epilepsy Alliance
The Intractable Childhood Epilepsy Alliance is a non-profit organization dedicated to improving lives of children affected by intractable epilepsy through evidence-based information, advocacy for appropriate medical treatment, promotion of drug development, data collection through patient registries, and funding of research that will lead to a cure for intractable childhood epilepsies.
Rare Epilepsy Network (REN)
This is an initiative created by and for patients with rare epilepsies and their caregivers and families in cooperation with the Epilepsy Foundation, Research Triangle Institute, Columbia University and New York University. They seek to create a patient driven registry designed to connect people with rare epilepsies and their caregivers with researchers who are committed to improving the lives and quality of care for people living with epilepsy.
A non-profit organization dedicated to raising awareness and understanding of Sudden Unexpected Death in Epilepsy (SUDEP), with the ultimate goal of finding its cause(s) and prevention.
A website that provides interactive information about epilepsy, lifestyle tips, and stories from people who have it.
Epilepsy foundation Community Forum
An online resource to connect with others affected by epilepsy. You can read others experiences or share your own in one of the message boards or participate in a live chat.
Coping with Epilepsy
This is a message board that provides a chance for people living with epilepsy, their families, and friends to discuss aspects of living with and coping with epilepsy.
This is a Canadian-based internet community where kids with disabilities or illness can meet others like them, make friends from all over the world, share their hopes and fears, find role-models and mentors, and feel like they belong.
Living Well With Epilepsy
This website provides personal stories, commentary, interviews, and awareness events for the global epilepsy community. It features a blog that offers insightful coverage addressing the spectrum of issues faced by people living with all types of seizure disorders.
Additional Websites of Interest
Lions Foundation of Canada Special Skills Dogs
This program trains assistance dogs for individuals with physical and/or medical disabilities with mobility concerns. They also offer a specific Seizure Response Dog training program.
Rett Syndrome Society of BC
The society provides information and support for families of those diagnosed with Rett Syndrome.
Neurological Health Charities of Canada
They are a collective of organizations that represent people with chronic, often progressive, neurological and/or neuromuscular diseases, disorders, conditions, and injuries (brain conditions) in Canada. Their role is to provide leadership, evaluating and advancing new opportunities for collaboration specific to advocacy, education, and research projects, related to brain health.
Other Epilepsy Organizations in British Columbia
Victoria Epilepsy and Parkinson's Centre
A non-profit society whose purpose is to strengthen clients' and families' ability to manage to physical, psychological, and social effects of Parkinson's and epilepsy in the Greater Victoria Regional District.
The Centre for Epilepsy and Seizure Education in British Columbia
A non-profit agency that supports people with epilepsy and addresses the call for increased awareness and public education about epilepsy.